I Lost Tuesday
I guess December 8, 2020 will be memorable to everyone but me. I have no recollection of that day existing. It was Monday, then Wednesday.
I have been told about the events that occurred. I have been told of the events after. I have had to ask people to speak with my husband. He knew what happened. I don’t.
I sent the text to my husband. He was at work. He tried to call me back and I wasn’t making sense. We live with his parents, so he called his mom to have her check on me.
I don’t know what happened. I have been told that an ambulance was called and Gabriel came home from work. I scared my family. I would probably be more upset. I think I should be more upset.
The EMTs helped me up the stairs and into my car. On the passenger side. Gabriel drove me to the ER.
I know that I had tests. Blood work, MRI, probably a CT. I had new tumors growing in my brain. My blood pressure was low. My heart function would show as lower from an echocardiogram the next day.
I have used up my brain radiation. I am not allowed another whole brain, which would be the treatment for all those little fuckers. I think I am still allowed targeted, but there are too many.
The chemo was working really well for the rest of my lesions and tumors. It is just making my heart not so good.
I was suffering from a seizure in my brain. This would be why I was having so much trouble talking and can not remember Tuesday. I am now taking anti-seizure medication.
The very low blood pressure would be the cause of not being able to stand up.
I was taking heart medication with the intent of keeping my heart function above 50%. I am not taking that any longer and my chemo has been lowered in hopes of helping my heart get back into the 50’s. There is also some hope that it will break the brain barrier and get the brain tumors.
With the possible seizures, I am no longer allowed to drive. I just got a new car. I love my car. At least this gives me a chance to give my oldest hours for his driving class. In my new (used) Rogue.
Palliative care has been brought up. I had a team when I was first diagnosed. I was very sick at that time. I am so mad. I have plans. I need to prepare things for my family.
It has now been a few weeks. I have been the recipient of the generous side of humans. We have had food delivered. People went a little crazy with gifting my kids. Someone picks up my kids clothes, washes them, then returns them.
The Warrior Sisterhood left a gift in my yard. I cried.
I can’t think of how to properly express my gratitude. I wake up most mornings with a headache or a back ache bad enough for pain meds. I have trouble walking a good portion of the time and I now have a loathing for stairs.
Having help with food and clothes is fantastic. If any of you read this, please know your actions have been absolutely appreciated.
I don’t know what my future will bring. December 8 scared all of us. My doctors and care team are working hard to keep me going. My family and friends are working hard to keep me going. I love all of you.